here are the boys, circa june '09 (i took the photos this very morning). we are doing very well. as usual, my apologies for the (very) long delay in posting an update.
we have been using conley's feeding tube faithfully over the past six months and, to be quite honest, we haven't seen the progress we had hoped for and had been told we would see. i guess that is just how it goes sometimes. however, in our frustration and because of my failure to pack conley's tube apparatus on a short trip recently, we discovered that when we do not tube-feed him after each meal and during the nighttime, he actually eats decent amounts of food on a relatively normal schedule.
we are cautiously optimistic about this development and appreciate everyone's prayers. we do not know if he has just changed his mind about the matter or if maybe the tube-feeding has increased his appetite. either way, we are ready to be done with the tube and would love for this to be a new chapter for conley and our entire family. we shall see. no matter what happens, many thanks to God for the two beautiful, joyful, bright boys who make us laugh and who challenge us every single day.
-love-
1 comment:
How frustrating that the tube is not working as planned/hoped. Yet our God is bigger than all of this as seen is Conley's increased appetite and the fact that he is alive. What a miracle! Our thoughts and prayers are with each of you. Hope you have a blessed summer enjoying the boys laughter and antics. :)
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